World Haemophilia Day is recognized worldwide on 17th April every year to increase awareness of haemophilia and other inherited bleeding disorders. It was started by the World Federation of Haemophilia (WHF). This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment. The international community started observing WHD in 1989 and April 17 was chosen to recognize Frank Schnabel’s – the founder of WHF’s birthday. World Haemophilia Day is aimed at raising awareness about haemophilia and other bleeding disorders. It also helps to raise funds for patients who cannot afford haemophilia treatment as well as attract volunteers for the World Federation of Haemophilia.
As per the reports, Haemophilia affects approximately 400,000 people worldwide, many of whom are not fully aware of their condition or are not getting the treatment they need. Because a relatively small percentage of the world’s population suffers from haemophilia, many people are not aware just how serious this condition is and how much more difficult and dangerous it makes the lives of those who have it. And this is where World Haemophilia Day comes in.
World Haemophilia Day Theme for 2018
The theme for 2018 is sharing knowledge. The bleeding disorders community is filled with the first-hand knowledge and experience needed to help increase awareness, as well as to improve access to care and treatment.
How to Celebrate World Haemophilia Day
Numerous events are organized every year on World Haemophilia day, filled with educational presentations and other events that promote an awareness of the disease and those who suffer from it. Many people go to Twitter and follow the World Federation of Haemophilia, and retweet their tweets about this day. It may not seem like much at first glance, but social media has proven itself to be incredibly powerful on many occasions, especially when it comes to getting the word out about an important cause. Even the smallest of gestures can make a world of difference!
Qutub Minar is lit up in red colour to mark World Haemophilia Day.